Registries combine data from multiple studies with identical or similar protocols. Querying that aggregated database yields correlations – real-world evidence – for both posited and serendipitous hypotheses.
The Promise Versus The Reality
In theory, registries are powerful vehicles to support clinical decision-making and advance medicine. However, despite their proliferation, few registries achieve their goals. (Indeed, many do not state concrete objectives.)
Circles enable sponsors to convert the potential of their registries into demonstrable reality and value for all stakeholders.
Registry Challenges
From the standpoint of busy clinicians, there is no compensation and little other incentive to contribute data. They often forego ownership rights to such data when they do.
For potential registry users, data are submitted sporadically, partially and often without clear clinical context. Data verification is difficult, access to full datasets is limited.
Circles address these challenges.
Registry Use Cases
Registries benefit medical societies seeking to deliver on their mission, add value to members, or attract industry funding. Patient advocacy groups can use registries to support legislative initiatives. Foundations with healthcare focus can increase donations through registries demonstrating real impact.