Health Registries - Scientifically Validated Study Design
Registries combine data from multiple studies with identical or similar protocols. Querying that aggregated database yields correlations – real-world evidence – for both posited and serendipitous hypotheses.
Theory versus Practice
In theory, health registries are powerful tools to support clinical decision-making and advance medicine. However, despite their increasing use, few registries achieve their goals. (Indeed, many do not state concrete objectives.)
Circles help sponsors convert their health registries into real-world evidence and value for all stakeholders.
HEALTH Registry Challenges
Busy clinicians see no compensation and little other incentive to contribute data. They often surrender ownership rights to such data.
As a result, data submitted to health registries are often inconsistent, incomplete, and lack clear clinical context. Data verification is difficult, access to full datasets is limited.
Circles address these challenges.
HEALTH Registry Use Cases
Health registries help medical societies fulfill their mission, add value to members, or attract industry funding.
Patient advocacy groups can use health registries to support legislative initiatives.
Through demonstrating real-impact health registries, health-focused foundations can increase their donations.
Patient advocacy groups can use health registries to support legislative initiatives.
Through demonstrating real-impact health registries, health-focused foundations can increase their donations.